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  • Dec 16, 2024, 9:07 PM

    With the polio vaccine in the news, I want to tell some of my mom's story:

    My mom got polio when she was a kid living in southern California, pre-vaccine. She survived it, but it put her in a wheelchair for a while, then leg braces. She was actually a literal poster child for the Polio vaccine: they used her picture on some March of Dimes posters.

    But this was not a thing that just affected her for a while, and then she was better. As a result of having Polio, her right leg is slightly shorter than her left. For her entire life, she's had to have special lifts put into her right shoe. When she drives, she uses her left foot for the brake pedal because she's concerned that her right leg might not be strong enough to stomp on the brake hard if needed. She has always been limited in how long and far she can walk: I remember many times on family vacations where the rest of us would go off to do something and she'd have to sit it out because she knew she just couldn't do that much walking.

    Now that she's elderly, a lifetime of this is catching up: her bones, joints, ligaments, tendons are all messed up from having a weak leg and an unbalanced gait. Her mobility is declining much faster than it should be, even for someone of her age. She had to have her ankle fused because of the constant pain it was causing.

    Polio didn't ruin her life, but it has stolen it in slices. Times she couldn't keep up with her kids, times she was just too tired to be able to stay on her feet, chronic pain, losing the ability to climb stairs in her own house as she ages.

    Vaccination is the greatest public health success humanity has ever produced, and we forget this only at our own peril.

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Replies

  • Dec 16, 2024, 9:30 PM

    @ricci thank you to share such a personal and touching story.

    A hug to you and your mom!

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  • Dec 16, 2024, 9:32 PM

    @jak there are people who have much more heartbreaking stories, but hey, this one is (sort of) mine to tell

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  • Dec 16, 2024, 10:13 PM

    @ricci I worked for decades as a massage therapist. One of my regular clients was an older woman with grown children.

    She had had polio as a child, and it left her with uneven legs and a very deformed spine.

    She did go on to live a happy and productive and connected life with her husband and children and co-workers. But as you say, she also lived with lifelong physical limitations and chronic pain. A sobering reminder of just how important and effective vaccines and all modern medicines are.

    My own parents were born before vaccines, before antibiotics. I remember them telling stories from their childhoods. Times when the family would leave town and "vacation" at campgrounds in tents away from other people. Times when, "No, you can't go visit Mary to play now. She has Diphtheria." Or measles. Or pneumonia.

    My dad nearly died of pneumonia at age four. All they could do was keep him covered and propped up in bed with his little stuffy Laddy Dog and wait, while his fever raged on and on, his lungs filled with fluid, and he survived by breathing (panting) with the inch of clear lung he had left.

    When my own kids were little and feeling nervous about getting shots, I would tell them about their grandparents, and let them hold Laddy Dog, and tell them they were doing such a good thing because they weren't just protecting themselves, they were taking care of all the other people around them.

    #storytelling #vaccines #polio

    A very old, small dog stuffed animal. It is so old, all the fur has been rubbed off; nothing is left but the burlap cloth it was woven into. The lone button eye dangles a little from its threads. There are other threads visible, where repairs were made over the years -- to back, to ears, to nose, and paws. 

It's easy to imagine a tiny boy, deathly ill in bed, clutching this small bit of comfort.
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  • Dec 16, 2024, 10:16 PM

    @anne Thanks for sharing this story, and Laddy Dog, with us ❤️

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  • Dec 16, 2024, 10:51 PM

    @ricci I'm friends with someone who got an early version of the polio vaccine. She has issues walking and staying balanced - I think the lower part of one leg just sort of dangles but I'm not totally confident.

    If that's what the vaccine did, I don't want to have people newly learning what the full-blown disease does.

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  • Dec 16, 2024, 11:44 PM

    @ricci Thank you for this story. My dad was able to avoid getting polio, despite a massive outbreak in the Chicago area in 1937, because his mother fled with her two young boys to live with family nearly 200 miles away in Two Rivers, Wis. He rarely saw his father, who stayed behind to work in the foundry in Rockford, for about 10 years. He and his brother remained healthy, although that came with its own kind of cost.

    Today, could anyone self-isolate in a country that has 3x the population?

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  • Dec 16, 2024, 11:59 PM

    @ricci @raganwald my uncle had polio as a kid, which robbed him of control of one of his legs. I’ve always known him to walk with a kind of limp because of it.

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  • Dec 17, 2024, 12:08 AM

    @ricci

    Not vaccinating your children, absent a legit medical issue like allergy to ingredients or an insufficient immune system, is child abuse.

    Change my mind.

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  • Dec 17, 2024, 6:51 AM

    @Aphrodite @ricci unfortunately its not as easy as that.
    it should be, but its not.

    knowing when certain vaccinations are available, how often they need to be taken, documenting which have been taken and which havent, the time required out of your day to get them, and what not working that day can mean for your near future, and the stresses of everyday life, and sometimes it just slips through.

    not vaccinating your kids is a societal issue, not a personal one.

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  • Dec 17, 2024, 12:44 PM

    @MostlyCoraGrace @ricci

    Admittedly I have a bias because I needlessly got whopping cough as a kid and am dealing with a lifetime of complications.

    I won’t deny that.

    However, when people deliberately choose to not vaccinate their kids, that’s someone choosing to leave their kids exposed to life altering diseases.

    Will also admit that not living stateside for 8y in places where workers don’t have to sacrifice greatly for kids has altered perception.

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  • Dec 17, 2024, 12:39 AM

    @ricci this was my fathers story but he also had severe scoliosis that twisted his rib cage. Then when he aged he developed post polio syndrome along with polio related Parkinson’s Disease.
    I could never hate anyone enough to wish the last weeks of their life were like his. The idea that anyone could be against vaccinating to prevent that disease is beyond my comprehension.

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  • Dec 17, 2024, 1:34 AM

    @ricci

    There's also been a lot of talk about drinking raw milk,

    if you drink raw milk, you can get spinal tuberculosis (estimated 15% of tuberculosis is via bovine-tb, raw milk - and TB is one of the world's biggest killers, surpassed by covid, but bad - and curable, but poor people not being helped by the rich, awesome)

    my gran had spinal TB a long time ago, and was lying in hospital for a year being treated - not fun

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  • Dec 17, 2024, 1:38 AM

    @ricci What really makes me angry with these anti-vaxer is how selfish they are. I mean if they wan't to kill or mame themselves, I don't mind, but they endanger so many other people. Currently they benefit from a still high vaccination rate, but the lower it gets not only they suffer, but the whole mankind.

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  • Dec 17, 2024, 2:26 AM

    @ricci A good friend of mine had a "mild" case polio as an infant. He lived an extraordinarily active life, but suffered from post-polio syndrome in his 70s, a disease similar to ALS. It killed him prematurely. It's a horrible disease. Also preventable now.

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  • Dec 17, 2024, 3:01 AM

    @ricci My mom, too. She recovered sufficiently to become a teacher. The kids laughed that they always had a warning when she was coming because her shoes went clip CLOP clip CLOP.

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  • Dec 17, 2024, 3:06 AM

    @ricci Vaccines are great yeah, but people often think of them as the silver bullet for their health. Proper nutrition and exercise need to be implemented as well. See most recently: COVID deaths overwhleming skewing toward obese individuals. We are a sick society.

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  • Dec 17, 2024, 12:43 PM

    @duckyd @ricci COVID kills still all kinds of people, especially the elderly and young children. The blame lies with our failed public health officials and our societal failure to practice basic public health measures to keep one another safe. Do not blame victims for society's failure.

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  • Dec 17, 2024, 5:41 AM

    @ricci Hi Rob. Thanks for sharing. My Mom got polio from a pool in fort worth Texas in 1951. They said she wouldnt survive and she did. They said she wouldnt walk but she did. She had a great life but it was hard, much like your Mom's. She was a proud woman with a killer sense of humor and a huge heart. Post polio syndrome caused her a lot of pain and eventually contributed to her death. Any of these anti-vax numbnuts couldnt last a minute in her shoes.

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  • Dec 17, 2024, 5:48 AM

    @ricci In Germany,,a child needed intensive care because the poor unvaccinated lad caught diphtheria. His antivax mom caught it, too, but because she was raised by people with more sense than her, even her weakened vaccines meant that she was only slightly ill while her child had to be put into an artificial coma.

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  • Dec 18, 2024, 8:43 AM

    @Giliell @ricci I I worked as a nursery school teacher about 15 yrs ago during a measles outbreak. One of 3 year olds ended up in intensive care. His Mom asked the doctor why his vaccinations did not protect him, and the answer
    "The vaccination is why he survived."

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  • Dec 17, 2024, 7:29 AM

    @ricci thank you for sharing your mum's story. Please send her greetings from a stranger across the fediverse. Wish you both a peaceful holidays!

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  • Dec 17, 2024, 6:48 PM

    @ricci I am looking for sources. But this reminds me of the disabled peoples protests. Folks afflicted with polio were a large chunk of protestors that eventually got the ADA signed into law.

    I'm frustrated that people don't know (and some blissfully don't care) at the amount of suffering that went on before vaccines.

    Being disabled is OK. Being willfully ignorant and then ending up disabled, or infecting someone and having them become disabled... is far from ok. [Just, many emotions]

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  • Dec 17, 2024, 7:45 PM

    @CarolynStirling Yeah, she hasn't been diagnosed with this - it sounds even more awful, and I hope she avoids it!

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  • Dec 18, 2024, 8:40 AM

    @ricci She sounds like someone with amazing mental fortitude.
    I find it incredible how fast societal memory fades. I had a school teacher who walked with a mobility aid because of childhood polio, an aunt who had her eyes damaged by measles and a family friend who was profoundly deaf due to an infant measles infection.

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