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  • Bob Thomsonbobthomson70@mastodon.social
    May 28, 2025, 4:23 PM

    Update: Yesterday last IV out. Today double J catheter out; put in to aid urine flow post transplant. Worst experience of pain so far. 3 folks in a row trying. It has a magnet on it which is meant to lock on so it can be pulled out of U know where. No joy twice. 3rd time was a charm using a scope with pincers in it.
    Saw dietician after.
    AFAIK final thing is a kidney ultrasound and if ok leave Friday afternoon for home.

    #chronicillness #chronickidneydisease #CKD #kidneydisease #KidneyDonation

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  • Bob Thomsonbobthomson70@mastodon.social
    May 28, 2025, 4:28 PM

    I’ll be back a week later for follow up which is a whole thing in itself, including home 24hr urine collection which you take 2 small samples of to your appointment. Have to arrive 07:30 & I am 2 hrs away 😩 Luckily I get a free taxi since I am not allowed to drive for a month. Weekly appointments for the first 3 months, fortnightly for 3 months more, once a month for the rest of the first year. All about the med levels #chronicillness #chronickidneydisease #CKD #kidneydisease #KidneyDonation

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  • Bob Thomsonbobthomson70@mastodon.social
    May 29, 2025, 8:09 AM

    Doing my 4 laps of the ward a nurse said get dressed and you can leave the ward into the wider service. So put on my leaving outfit on and wandered out to the exit and back. Should’ve asked if outside was allowed, figured not :)

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  • Bob Thomsonbobthomson70@mastodon.social
    May 30, 2025, 8:47 AM

    Hopefully out today. Awaiting doctor following an ultrasound of bladder, kidneys, new kidney and all related vessels and plumbing. 🤞 Tech said it looked all good.

    Most of the way through the exam the machine locked up so badly they had to reset it, fortunately their worries about losing the images were unfounded and it continued on rather than starting again (30 min process)

    #chronicillness #chronickidneydisease #CKD #kidneydisease #KidneyDonation

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  • Bob Thomsonbobthomson70@mastodon.social
    May 30, 2025, 10:04 AM

    Taxi coming in 3 hours, doc / meds handover and a last lunch and offski!

    Then hameuldaeme 🏠 🐕 👩

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  • Bob Thomsonbobthomson70@mastodon.social
    May 31, 2025, 3:19 AM

    Coming home was less pleasant than expected due to 35 deg C weather & non working aircon in the taxi. On the plus side the driver was a, down the street neighbour who has taken me to hospital 2 times before & kindly rearranged routes so he could drop by the pharmacy as he knew I wouldn’t be able to drive & pick up my meds for the week. Then it was a rush to figure out a quick low salt meal. Work to do on that front,but it will get easier. Ended with a long overdue dog walk once it was down to 24

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  • Bob Thomsonbobthomson70@mastodon.social
    May 31, 2025, 3:35 AM

    Own bed and no nurse visit around midnight, and then drawing blood some time 04:00-06:00, meant a sleep from 23:00-05:00 except for the peeing.

    It being 35 C until late on yesterday didn’t help my oedema of course, but thankfully cooler after today.

    Not doable to walk Millie lunchtime when it’s so hot and I am advised to avoid the sun 11:00-16:00 on sunny days due to elevated skin cancer risk, even with SPF50 on.

    Max temps are 31 today, 25, 24, 23, 22 deg C in days to come 🤞🥵

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  • Bob Thomsonbobthomson70@mastodon.social
    Jun 2, 2025, 7:03 PM

    I checked last time I had 120 or less creatinine it was in 2008, the year in which I was diagnosed which is wild.

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