So up at the top: none of this is medical advice, every body is different, please do not interpret this as a suggestion to go try anything without doing your own due diligence first, etc.
Ok, now that I've cast the proper rituals to ward away lawyers:
I have a fairly common ME/CFS story - brutal episode of viral illness as a young teenager; mild to moderate disability ever since; was well into my 30s before figuring out what was going on; have never yet found a doctor who could help in any meaningful way; too much medical trauma to look more anyways.
For the past 6 months or so I've been on a low dose of Acetyl-L-carnitine (ALCAR) as well as citicoline. There is solid research on these both separately and as a combo, and the most intriguing stuff (for me personally) is the finding that it's notably extra-effective for people with severe childhood trauma (which I also have).
I'm prepared to say it's changed my life. I'm doing things I couldn't have dreamed of last summer. I genuinely can't remember when I had my last flare/crash. Even in the midst of a very stressful year, I'm just... not collapsing anymore. And I'm not depressed ever.
[edit to add: oh yeah, like 90% of my migraine symptoms have vanished, too, and there's research backing that outcome as well]
I know it's not going to help everyone, and I was always lucky to not have super severe symptoms.
But I know how much I've ached for positive stories over the years, and now that I myself have one, well. Just seemed fitting to throw it out there.
Anyone else got hopeful results, from this or other interventions?
It just makes me think that the whole thing might be solvable for all of us, even if the details take more time to sort out... this may not always be incurable :heart_cyber:
#MECFS #ChronicFatigue #LongCOVID
