RE: https://mastodon.social/@Thayer/116002682012736788
To follow up on the situation where non consensual NHS AI got my medical notes wrong: it is possible to have AI removed from your NHS note taking that's on by default. You have to request it in writing from your GP. I have now managed after a request in Feb, and have it confirmed in writing. Recommend you do to!!!
@Thayer Thanks for the heads up. I've checked my NHS notes, and so far I see no AI included.
@HollieK72 great, fingers crossed it stays the same 🙂
Jun 12, 2026, 12:33 PM@Thayer luckily my GP isn't up to speed on AI note taking.
Jun 12, 2026, 2:42 PM@Thayer Thanks so much for flagging this - do keep us updated!
I recently discovered that my local NHS trust had started using what I've learned is being called "ambient voice technology" for note taking and summarising appointments. This wasn't something anyone mentioned to us, but they had some posters about it up in amongst all of the other posters that nobody ever looks at. So, um, that's informed consent I guess?
Key point from the posters: "No audio files are stored [...] Conversation audio is immediately deleted", which made me think I am going to have start making my own recordings. And then it struck me that making my own recordings was probably always a good idea because of the sheer volume of errors in the post-clinic letters they send.
Also TIL there is something called AVID, the Ambient Voice technology Innovation and Development community, which fedi folk might be interested in:
you can share experiences, learn, connect, and work together with others who are shaping the future of ambient voice technology (AVT) in health and care.
https://ambientvoice.thiscovery.org/
Mmm, time to share some experiences! :goose_bonk:
@m awesome thank you for adding to the info!