@mcmullin people say that about my life/illness too (i'm bedbound with ME/CFS). But I think they often say that out of fear. They see all the things they would lose if they'd end up like me. I already lost all those things. And every loss came with grief. But I also experience a lot of beauty and love. I don't actually think my life is less fullfilling than when I was still healthy and running around a university, thinking things like 'career' were in my future.
Of course I don't speak for everybody who has ME/CFS when I say this, only for myself. And of course, me typing this relatively quick is enough proof that I have so much more options to express and enjoy myself compared to lock-in people. But I get it. Life is worth living.
And this conversation reminds me of this poem I wrote a view months ago. I probably said it better back then.
