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  • Morgan ⚧️raphaelmorgan@disabled.social
    Oct 11, 2026, 7:33 PM

    Questions for people who currently work in healthcare, especially in fascist western countries like the US :boost_requested:

    I've seen a lot of dismissals of some ideas I'm writing about by people who don't to my knowledge work in the industry, so I'd like some feedback from those who do. Replies encouraged, and I'd love to do some interviews if possible.

    To all healthcare workers: if your needs were met, would you continue your job without being paid money for it?

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Replies

  • Morgan ⚧️raphaelmorgan@disabled.social
    Oct 11, 2026, 7:39 PM

    To doctors and diagnosticians: how would you feel if patients came to your appointments with a list of their symptoms and feedback from a peer support group of people who have similar conditions? E.g. "there were a lot of autistic people in the neurodivergent support group who said they related to my experiences," or "people in the chronic illness support group suggested I get my thyroid checked."

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  • Morgan ⚧️raphaelmorgan@disabled.social
    Oct 11, 2026, 7:43 PM

    To healthcare educators: if you got all the help you needed, would you be willing to invite guest lecturers to teach about their own chronic illnesses, disabilities, mental illnesses, etc (assuming you don't have the same conditions yourselves)?

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  • Morgan ⚧️raphaelmorgan@disabled.social
    Oct 11, 2026, 7:46 PM

    To anyone who works in manufacturing or distribution of medicines, medical devices, mobility aids, etc: what do you think are the biggest bottlenecks to patients actually receiving these products?

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  • ig 🏳️‍🌈ignova@sunny.garden
    Oct 11, 2026, 10:37 PM

    @raphaelmorgan from the end user side: 1. cost, 2. stigma, 3. comorbid disabilities, e.g. a person who has difficulty using hearing aids due to cognitive decline or difficulties with dexterity.

    there is some data to suggest that stigma may be a greater barrier than cost, as countries with full device coverage do not necessarily have higher device adoption rates. sometimes people cite 'cost' as the barrier because they don't want to admit the real barrier is stigma. without the stigma, they might have felt the cost was worth it.

    from the manufacturing side: 1. greed, 2. small customer volumes affecting the economics, e.g. by necessitating proportionately higher prices. at a distant 3., perhaps component shortages, like computer chips.

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  • Morgan ⚧️raphaelmorgan@disabled.social
    Oct 13, 2026, 11:14 PM

    @CStamp in my experience, doctors haven't been all that helpful with my chronic issues, because there are basically two types of doctors I've met:
    - doesn't listen or care
    - cares deeply and is trying their best, but is super overworked and doesn't have the time to go over all of my symptoms, ask all the relevant questions, and inspect all bodily systems at the same time

    I want to lighten the load for that latter group and give them the support they need to fully address all patients' concerns.

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  • CarolynCStamp@mastodon.social
    Oct 13, 2026, 11:22 PM

    @raphaelmorgan Then I would definitely take a list of written stuff with me. Self advocate, with the help of the doctor’s medical training.

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  • SilverFoxsilverfox@toot.cat
    Oct 11, 2026, 11:56 PM

    @raphaelmorgan for the work for free question - I work on the IT side, and while I could not work for free, at the same time it’s much more fulfilling than working non-healthcare IT.

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  • Morgan ⚧️raphaelmorgan@disabled.social
    Oct 12, 2026, 12:10 AM

    @silverfox that sounds reasonable to me! For clarification, by "could not" do you mean "don't want to and would not" (a perfectly valid position, it's your labor/time and you should do with it as you need/please) or "would be unable to and still meet my needs"? I tried to phrase the poll so it's clear this is a hypothetical where you logistically *can*, whatever that involves, but can also *choose* not to

    Edit: "couldn't force myself to do it without the threat of starvation" also makes sense

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