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  • Matmatmoore@wandering.shop
    May 14, 2026, 8:01 PM

    @kitation
    Also having someone with her in appointments can be a way to minimise dismissal and back her up.

    Fibromyalgia is a diagnosis of exclusion, so make sure they have actually made an effort to exclude other causes. If she suspects a particular problem based on her own research, she has a right to bring that to a doctor and have them listen.

    The NICE guidelines doctors are supposed to follow are accessible online (nice.org.uk/guidance/published). If the doctor is not following them, ask why.

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  • Matmatmoore@wandering.shop
    May 14, 2026, 8:06 PM

    @kitation also depending on how her conditions affect her daily living, she might want to look into mobility aids or living aids that make tasks easier / less painful. The council can provide for free a needs assessment which I think will advise on stuff like this (I don't have direct experience of this though). gov.uk/apply-needs-assessment-

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